EEG~MRI Akron

What a week! I spent last Wednesday, Thursday, and Friday in Akron Children's hospital with Gabby. After last months appointment's with Dr. Debrah Holder (Gabby's Neurologist) we came up with a game plan since her last /only seizure on January 25th. We had decided we would do a 24 hour EEG to compare to her last 1 hour one/ 24 hour EEG. We need to know what was going on and to see if more or less sharp waves are detected. We also meet up with Dr. Hudgins (neurosurgery)and decided it would be best to get some new images of her shunt and then follow up with an MRI after the EEG. I am awaiting the answers of the MRI (Not sure what answers it will give us. We have rejected all MRI's since the day after birth, again as I have stated before unless there will be a medical benefit of giving her a better quality of life we refuse it) But I cant wait to compare her MRI to the first one and the current one. I would like to see how the shunt has affected her scan. We never had one done after her shunt was place at 3 months old. (according to neurosurgery the moment they opened the membrane from around the brain the fluid actually shot out of the tube, so there was a large amount of pressure from to much fluid in her brain-Hydrocephalus)  I was told "off the record by Dr. Brown" that her EEG looked great. There were still sharp waves, but nothing like before. They did not record any seizure activity! (I  did the happy dance with the nurse!) The level of care we receive while there was again perfect as always. I cant say enough about the team of doctors and nurse's we have! They work together in every aspect of Gabby's care! The Easter bunny came to visit us while we where there, and we had lots of time to just play! Gabby's shunt series looked great. They stated it was in place and there is no blockage anywhere! So in all we had a great trip. We did stay at the Ronald McDonald house on Wednesday night. I cant say enough about the lady's who run this house and work here! Everyone is very kind, and welcoming! It's a home away from home. Thank you again for everything you do. If anyone is interested in collecting pop tabs for the Akron Ronald McDonald house please contact me for any information. We currently collect, and so do many others for us. This past trip we were able to take two gallon Ziploc bags full. Last year they collected around $4,000 alone in the Akron house! They use this extra money to purchase TVs and a new Radio system for in the dining room. They are also always in need of travel sized items (such as body wash, shampoo, razors, toothbrush....), house hold products(Ziploc bags, cleaner, hand wash, hand sanitizer) or food products (snack food's something a family can grave and go into the hospital with) If you are interested in donating please feel free to contact me. When we make our trips we make an extra stop at the house to make a donation!


***** Update: We received a phone call from Dr. Holder's office today, nothing new. Her brain still looks the same, but a little larger than before. (With the fluid pressure removed it just expanded) We go in 3 months and will be receive a copy of her MRI's. : )