A Different Dream.....

Tuesday, April 10, 2012

Happy Easter!

I hope everyone had a Happy Easter and took a moment to remember what Easter is all about. We had a great "Spring Break Week". Kiera went for a visit to Stacy & Nate's, and Dilly came here for a week. During Dillon's week, we did his first photo shoot. I must say as much as he did not want to do it, he LOVED it. We spent time watching movies and shows on Ntflix and Hulu, and just hung out. Dillon made a video with one of his friends, and for the most part had lots of fun. He is growing up so fast. With out any fighting he was willing to help me with about anything I asked (other than taking out Meeko-our dog). He even helped unload the dishwasher (Gasp!) I was gone for 3 of the days (Trip to Akron with Gabby) but did manage to even get some snuggle time with him on Friday night on the couch. I know John was happy to just be able to watch TV and relax with Dill. What once was a fight to get him to come (We still are not sure why?) He now is back to old Dilly. He spent one day "Sleeping till 2-with the answer of come on its my first day of vacation" then was on the go joking around, playing, and just being himself again. I cant wait to have him here over the summer. I miss having him around. The girls even miss him more. Jazmyne and Kirstynn are on refusal to put away his play guns, One is laying at the top of Kirstynn's bed. They keep going though his closet digging out his stuff .I know Kiera misses him to. She has stole one of his hoodies.
I must say we are very blessed to have our little family. I love almost every minute of it.(Other than the moments of fighting) I count my blessing's everyday. As you will see in our pictures my older brother "Uncle Jesse" just a litter of baby bunny's (2 weeks old) and had one come visit us at Nana & Papa's house. Gabby was unsure of it, but did let it giver her bunny kisses. We colored eggs later that night and off to be the girls went. Easter morning was a blast. That Easter bunny hid Kiera's eggs extra hard this year, but the funny part was the younger girls found half of the hard ones. The girls all loved what they got, and that Silly Easter Bunny forgot the webkinz in our van till last night. The girls were extra excited to get them (even a couple of days late)! Happy Easter!

Monday, April 9, 2012

EEG~MRI Akron

What a week! I spent last Wednesday, Thursday, and Friday in Akron Children's hospital with Gabby. After last months appointment's with Dr. Debrah Holder (Gabby's Neurologist) we came up with a game plan since her last /only seizure on January 25th. We had decided we would do a 24 hour EEG to compare to her last 1 hour one/ 24 hour EEG. We need to know what was going on and to see if more or less sharp waves are detected. We also meet up with Dr. Hudgins (neurosurgery)and decided it would be best to get some new images of her shunt and then follow up with an MRI after the EEG. I am awaiting the answers of the MRI (Not sure what answers it will give us. We have rejected all MRI's since the day after birth, again as I have stated before unless there will be a medical benefit of giving her a better quality of life we refuse it) But I cant wait to compare her MRI to the first one and the current one. I would like to see how the shunt has affected her scan. We never had one done after her shunt was place at 3 months old. (according to neurosurgery the moment they opened the membrane from around the brain the fluid actually shot out of the tube, so there was a large amount of pressure from to much fluid in her brain-Hydrocephalus) I was told "off the record by Dr. Brown" that her EEG looked great. There were still sharp waves, but nothing like before. They did not record any seizure activity! (I did the happy dance with the nurse!) The level of care we receive while there was again perfect as always. I cant say enough about the team of doctors and nurse's we have! They work together in every aspect of Gabby's care! The Easter bunny came to visit us while we where there, and we had lots of time to just play! Gabby's shunt series looked great. They stated it was in place and there is no blockage anywhere! So in all we had a great trip. We did stay at the Ronald McDonald house on Wednesday night. I cant say enough about the lady's who run this house and work here! Everyone is very kind, and welcoming! It's a home away from home. Thank you again for everything you do. If anyone is interested in collecting pop tabs for the Akron Ronald McDonald house please contact me for any information. We currently collect, and so do many others for us. This past trip we were able to take two gallon Ziploc bags full. Last year they collected around $4,000 alone in the Akron house! They use this extra money to purchase TVs and a new Radio system for in the dining room. They are also always in need of travel sized items (such as body wash, shampoo, razors, toothbrush....), house hold products(Ziploc bags, cleaner, hand wash, hand sanitizer) or food products (snack food's something a family can grave and go into the hospital with) If you are interested in donating please feel free to contact me. When we make our trips we make an extra stop at the house to make a donation!

***** Update: We received a phone call from Dr. Holder's office today, nothing new. Her brain still looks the same, but a little larger than before. (With the fluid pressure removed it just expanded) We go in 3 months and will be receive a copy of her MRI's. : )

Photo's

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*Just needed to put his out there. I have heard that people have been having trouble with photoes being stolen off their blogs, and used. (this is also happened on facebook!) Please dont download or upload any pictures from this blog else I will be forced to close it! :) Happy reading!